There is a growing shift towards patient-centred care that actively engages patients and their families in health care decision-making. Having access to straightforward, easy to understand information resources is essential to support families in decision-making.
The ECHO Research, Alberta Research Centre for Health Evidence (ARCHE) and Cochrane Child Health research programs at the University of Alberta aim to engage parents/families in developing processes and resources for connecting parents/families with research-based information on children’s health care.
YOU’RE INVITED TO APPLY TO JOIN OUR PARENTS’ ADVISORY GROUP (PAG)
Needed: Volunteers who are…
- Parents, grandparents or legal guardians of children under 18 years of age.
- People who are open, curious, and want to help improve the health system.
- People who are passionate about building something new and able to generalize their own experience to other contexts of care.
- Able to work in a cooperative group and able to access emails and participate in teleconference meetings.
Purpose: To provide advice, guidance, and knowledge from the patient/parent perspective for a variety of activities and initiatives that involve child health research in Alberta. For example:
- Evaluating digital information tools on common pediatric conditions for parents/families.
- Providing input on research processes for developing information resources and decision-making tools for parents/families, physicians and nurses.
- Providing input on how to involve parents/families as ‘researchers’.
- Contributing to building the framework for a sustainable Parents’ Advisory Group.
- 1-year term with option to renew.
- Meeting frequency will be based on need, determined by PAG members in consultation with the researchers. (Estimated 4-6 meetings per year.)
- Meeting attendance will be flexible, and may be in-person and/or via teleconference.
- In-person meetings will be hosted in Edmonton at the U of A campus.
- Meeting length: Approximately 2 hours, evenings or weekends.
- Refreshments/meals and parking reimbursement will be provided for in-person meetings.
If you are interested or would like additional information, please email Xuan Wu.
We would like to thank our current 11 P-PAG members who are actively involved in our research and are helping make a different in child health. All of our parent group members are valued and cherished, as they make up a unique and crucial component of our team.
Thank you parents!